Score! Perhaps…

The sucrolose-replacement quest that launched this blog seems to have reached a moderately happy conclusion. The sucralose was a bust. Apparently, the first time I tried it, the look on my face and the involuntary gag was enough to send our 7-year-old into a minor panic. Thanks to my hubby for managing that one.

Stevia? Grainy and cloying. And some powdered sugar, subbed in with the o.k. of my gastroenterologist, was chalky and either too thick or too thin. Not to mention that it reminded me of making up glaze for a Bundt cake–a ton of sugar, and just a dash of liquid. Except no cake.

Finally, the good folks at my primary care office put me on to our local compounding pharmacy and the extraordinary pharmacist who runs it. In consultation with Dr. Eos, she was able to create a suspension of the budesonide with Methocel, and even flavor it with mint. Delicious? Not hardly. It’s salty from the budesonide and the texture of very thick, well, snot. Imagine crying hard–really, really hard, the way you did when you were a kid. Then following it with something like an Andes mint.

But it does have the advantage of coming with a nifty little syringe that means I can just shoot it to the back of my throat and bypass most tastebuds. And, as my husband keeps reminding me, there’s no comparison with the sucralose.

In this whole increasingly crazy saga, I feel so lucky to be running across folks like this amazing pharmacist, who says she went into compounding because of her own esophageal issues that make it almost impossible for her to swallow pills. And my PA who knew about her in the first place. And Dr. Eos who’s willing to give it a try.

Real test? Repeat scope on Sept. 2.

About eosgirl

Trying to stop worrying and love my eosinophilic gastrointestinal disease.
This entry was posted in Budesonide, Case of EosGirl and tagged , , , . Bookmark the permalink.

1 Response to Score! Perhaps…

  1. Pingback: Me and My EGID | EosinophilGirl

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