Monthly Archives: February 2011

Raise Your Hand for Rare Diseases Day Feb. 28

Rare Diseases Day, sponsored by the National Organization for Rare Disorders, is Feb. 28, 2011. Visit the Rare Diseases Day website and click the “raise your hand” option. Pharmaceutical company Lundbeck Inc. will donate $1 toward rare disease research. Continue reading

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Posted in Advocacy, In the News, Public Service, Research | Tagged , , , , , | Leave a comment

Phooey

O.K., maybe the image is a little more dramatic than the reality. But what a disappointment, nonetheless. A couple of months on 2 mg of budesonide twice a day (bid, as is starting to work its way into my vocabulary). … Continue reading

Posted in Budesonide, Case of EosGirl | Tagged , | 2 Comments