In a recent comment, Kelly, also an EG adult, asked: “Am interested in what your current regimen is and how you keep up with personal & professional life while dealing with this condition?”
This isn’t something I’ve blogged much about, mostly because it makes me feel self-conscious and self-indulgent. So many eos folks have it far, far worse. On the other hand, as my husband recently told me, “Your life isn’t quite like everyone else’s.”
So, here goes. I’ll do this in two parts. Today: a post about regimen. To follow: one about coping.
Right now it’s just budesonide, after breakfast and at bedtime. The Splenda slurry made me gag and wonder if I was poisoning myself with sucralose. Now, my local compounding pharmacist mixes me up a minty Methocel suspension. My pharmacist rocks!
As a teen and early-20, I spent many years on and off prednisone. While I never had miserable side effects, I can’t help but wonder as a 40-something what it may have done to my bones.
I’m always curious about home remedies. Given my recent refluxiness, it’s lately been such things as turmeric tea (surprisingly tasty with honey). I’ve even been known to pop a homeopathic pill and could swear they’ve occasionally provided symptom relief, despite everything I know about why that just cannot be true.
In the Kitchen
This is the tricky part. I’m 100% dairy-free, and can only eat eggs when they’re baked into something. Otherwise, it’s like having food poisoning. Oats give me instant heartburn. Beer gives me instant heartburn. Citrus juice gives me gross bloating and belching. Ingredient-reading and waiter-quizzing are cornerstones of my life.
The frustrating thing is that I have no idea if any of these reactions are related to the EG or if they are just their own free-standing allergies and sensitivities run amok.
Last year, hoping I might be able to manage my symptoms with diet, I went in for the full battery of skin-prick testing and emerged with so many positives that it looked like I had walked through a swarm of mosquitoes.
There were dairy, eggs, oats, and malt, for sure. Also most nuts, plus peanuts and coconuts; corn, rice, and wheat; beef, chicken, and lamb; shellfish (a non-issue for religious reasons); and apples! Apples!
The list was completely overwhelming and I wound up just dropping the diet idea. Still, I find myself wondering once again if maybe I could pull it off. Partly because I sometimes worry that things will just get incrementally worse if I don’t get to a cause for what’s going on. Partly because I just like to do things the hard way. Would love to hear from other adults if you’ve adopted a deeply restrictive diet or tried multiple food eliminations.