Worth a Shot?

Flickr: Thomas Weidenhaupt

Poor blog. I’ve been neglecting you and I hate that.

The last month has brought an incrementally expanding diet. Rice, chicken, beef, corn, apple, and soy have are all back on the menu. What riches! It’s like a buffet all the time.

The next biggies to try will be nuts and coconut. Then, what I have recently learned are called “high heat eggs.” And then that’s about it.

“High heat eggs” is a term that I heard from my allergist on Friday, during an appointment to see how the food re-introductions are going, and also what’s up with my continuing shortness of breath.

I was skeptical going in to the appointment. Even though the allergist had spent a fair amount of time answering questions, I wasn’t sure she was quite getting my wish to receive detailed information or a full explanation of test results, such as the pulmonary function test she had sent me for. It’s not that she was dismissive or unkind; she just seemed a little puzzled by my desire for detail.

This time, things went much, much better. She reviewed the test results with me in great detail (upshot: maybe some small airway issues, but minor, and the large airways seemed fine). She acknowledged the symptoms I’ve been having, and also the anxiety they cause me.  She didn’t think it was weird that albuterol didn’t touch the breathing, but did make me feel like crap. She was really honest about the limitations of immunological knowledge. She’s wary of pharmaceutical company claims.

Most interesting of all, though: I think we may have something new to try.

Signs suggest the breathing issues have an allergic origin. We talked about trying Singulair and then, since I didn’t love that idea, also about giving allergy shots a try. There is apparently some thinking that, in addition to a good track record for essentially curing environmental allergies, the shots can also calm the immune system generally. So, turning down the aeroallergen reactions maybe, just maybe, could also help with the GI eos.

This approach is appealing to me because it’s become my fear that these immune reactions will keep snowballing. First it was eos and eggs. Next it could be who knows what.

Unless I change my mind—and I’d love to hear your thoughts on this plan, friends—I will go in for a fresh round of skin prick testing in two weeks, and then we’ll make a more specific plan. It will probably include Singulair for at least a while, but right now I’m also leaning to the shots because (forgive me), it sounds like it’s worth a shot.

About eosgirl

Trying to stop worrying and love my eosinophilic gastrointestinal disease.
This entry was posted in Allergies, asthma, Case of EosGirl, Medications and tagged , , , , , . Bookmark the permalink.

6 Responses to Worth a Shot?

  1. Lauren says:

    eosgirl, I’m just starting at the top of the roller coaster ride of EE or EOE, just diagnosed, at age 55. Like you, already have food allergies, also environmental allergies, just never knew what they were doing to my esophagus. Been on Prednisone pills for a month, 6 weeks to go before weaning down, Prevacid for GERD, GERD diet limitations as well as just starting dairy and wheat free diet. And THanksgiving coming up! Reading all I can, dreading having to go back in to get dilated again (tissue too friable to do all the way first time?) soon. Doc said worst adult case of EOE he’s seen, I’m a poster child. Doesn’t understand why I’m not as excited as he is.

  2. eosgirl says:

    Hi, Lauren. Ugh. So sorry you find yourself in the club. I was pretty young when I was first diagnosed, but have a strong recollection of the pediatric GI fellow practically tap dancing into the room and announcing my diagnosis with glee. A weird feeling, isn’t it? Are you doing any better with the meds? I’ve found that the dilations are miserable for about 48 hours, then not so bad. Take the painkillers if you can, baby yourself, and hopefully it will make a difference. Are dairy and wheat your only restrictions?

    • Lauren says:

      Well, like I said, just at the beginning of this ride. I haven’t seen a dietician, or an allergist yet. He’s waiting the six weeks more of Prednisone. I don’t know if he knows what he’s doing or not. I was expecting him to tell me to do the whole elimination diet, but he just told me to stop the dairy first, then when I told him my skin was allergic to wheat, he said stop that as well. I am already not able to eat tree nuts or stone fruits, pears or apples because of allergies. GERD (also a new diagnosis, although I knew there were problems) restricts my diet in not eating anything after 6 PM, no acidic foods, no spicy foods, easy on grease, no chocolate, caffeine, small meals. I was not given a painkiller after the dilation, so after trying a regular meal, discovered lukewarm soup went down a lot easier.

      • eosgirl says:

        No painkiller? Youch! It sounds like you’ve got a lot going on. Hope you can get a handle on at least some of it. Let me know how everything goes.

      • Lauren says:

        I had my follow-up, and am thoroughly confused. Last time he was talking allergist, dietician/nutritionist, more dilating, and this time he took me off of Prednisone (finally!), put me on Budesonide for 3 months, and told me he’d see me after I was finished with it, in three months. That my throat would be smooth, and minus the rings, and I’d be done with treatment. It’s kinda scary, because SOMETHING caused this to happen. Maybe not food, maybe it was pollen, I’m tormented by seasonal allergies, but won’t it just happen again without some sort of treatment? Maybe the meds are worse than the scopings and dilatings? Told me just to keep track of my swallowing, if it got worse to come back in. Wow. BUT he put me back on dairy and wheat, which is so utterly wonderful!

  3. eosgirl says:

    That is confusing, Lauren. The budesenide may well work for you and will reduce the eos and inflammation, but as far as I understand, you won’t be “done” with treatment. It would just mean that you respond well to the budesonide, and that your symptoms would probably (probably) recur if you go off of it. Are you seeing somebody who is a specialist in EGIDs? It may be worth getting a second opinion from somebody who deals with this a lot.

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