EosinophilGirl came to be in the summer of 2010. That’s when I, a 40-something wife, mom and way cool librarian (at least according to Mr. Eos), learned that the eosinophilic gastroenteritis I thought I had outgrown in my teens and twenties really had not left me, after all. The eos are back, carrying an official diagnosis this time of eoshionphilic gastritis and eosinophilic esophagitis.
Perhaps I should have been paying better attention since, in retrospect, the symptoms have all been evident for a decade, and probably more. I’ve just done a really, really good job of denying them.
But I am paying attention now and, unlike my adolescent self of the early 1980’s, I’m more confident, possibly smarter, and at the very least, asking a lot more questions.
EosinophilGirl readily acknowledges that many people have to deal with eosinophilic conditions that are far more serious than mine. Some pediatric patients and their families face unimaginably wrenching decisions. Other children and adults with eosinophilic gastrointestinal diseases (EGIDs) spend years or even decades in search of a diagnosis for what is, according to the National Institutes of Health, an officially “Rare Disease.”
So, what I write here is applicable only to me and to my necessarily limited perspective. I have the good fortune of living near a major medical center, of connecting early with a doctor who studies this stuff for a living, of having adequate health insurance, and of not starting out in a crisis situation. For all that, I’m grateful.
Still, it’s a puzzling disease that’s come back to me at a complicated point in my life. It’s looking to be a long journey, so why not blog it?
Eosinophil header image by Bobjgalindo used under the terms of a Creative Commons license. Original image here.