EosinophilGirl came to be in the summer of 2010. That’s when I, a 40-something wife, mom and way cool librarian (at least according to Mr. Eos), learned that the eosinophilic gastroenteritis I thought I had outgrown in my teens and twenties really had not left me, after all. The eos are back, carrying an official diagnosis this time of eoshionphilic gastritis and eosinophilic esophagitis.

Perhaps I should have been paying better attention since, in retrospect, the symptoms have all been evident for a decade, and probably more. I’ve just done a really, really good job of denying them.

But I am paying attention now and, unlike my adolescent self of the early 1980’s, I’m more confident, possibly smarter, and at the very least, asking a lot more questions.

EosinophilGirl readily acknowledges that many people have to deal with eosinophilic conditions that are far more serious than mine. Some pediatric patients and their families face unimaginably wrenching decisions. Other children and adults with eosinophilic gastrointestinal diseases (EGIDs) spend years or even decades in search of a diagnosis for what is, according to the National Institutes of Health, an officially “Rare Disease.”

So, what I write here is applicable only to me and to my necessarily limited perspective. I have the good fortune of living near a major medical center, of connecting early with a doctor who studies this stuff for a living, of having adequate health insurance, and of not starting out in a crisis situation. For all that, I’m grateful.

Still, it’s a puzzling disease that’s come back to me at a complicated point in my life. It’s looking to be a long journey, so why not blog it?

Eosinophil header image by Bobjgalindo used under the terms of a Creative Commons license. Original image here.

2 Responses to About

  1. My husband wasn’t diagnosed until later in life. Once diagnosed and certain things going on with his body stopped he then realized those were symptoms. He thought he was normal. Now after eliminating some foods he knows what “normal” is. He’s had EoE his entire life. His esophagus shows the proof. It’s too bad he wasn’t diagnosed at a young age to prevent the irreversible damage his esophagus now has. Both of our young boys have EoE and we have a bit of relief knowing how my husband has gone his whole life and been somewhat healthy with no treatment. Our boys will always have treatment when needed and we pray things will be better for them.

  2. Amanda says:

    Before being diagnosed with Celiac disease, my doctor thought I might have had this because my eosinophil count was so high. I didn’t really buy it though because it’s always been high and I also have asthma, eczema and other allergic/inflammatory issues – so I figured it was just that. Glad to find your blog though and interested to read about your experiences!

Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s