Category Archives: Advocacy

#EOS11 – Post 1

EosGirl is at the Eos Connection Patient Education Conference, sponsored by the American Partnership for Eosinophilic Disorders. Let the games begin! Continue reading

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Are You a Patient or a Consumer?

Are patients consumers? It’s a concerning paradigm, especially for those of us with uncommon diseases. Continue reading

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Raise Your Hand for Rare Diseases Day Feb. 28

Rare Diseases Day, sponsored by the National Organization for Rare Disorders, is Feb. 28, 2011. Visit the Rare Diseases Day website and click the “raise your hand” option. Pharmaceutical company Lundbeck Inc. will donate $1 toward rare disease research. Continue reading

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