Tag Archives: rare diseases

Are You a Patient or a Consumer?

Posted on April 23, 2011 by

Are patients consumers? It’s a concerning paradigm, especially for those of us with uncommon diseases. Continue reading →

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Raise Your Hand for Rare Diseases Day Feb. 28

Posted on February 27, 2011 by

Rare Diseases Day, sponsored by the National Organization for Rare Disorders, is Feb. 28, 2011. Visit the Rare Diseases Day website and click the “raise your hand” option. Pharmaceutical company Lundbeck Inc. will donate $1 toward rare disease research. Continue reading →

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