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Tag Archives: rare diseases
Are You a Patient or a Consumer?
Are patients consumers? It’s a concerning paradigm, especially for those of us with uncommon diseases. Continue reading
Posted in Advocacy, Health Care, In the News
Tagged eosinophilic esophagitis, medications, rare diseases, research
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Raise Your Hand for Rare Diseases Day Feb. 28
Rare Diseases Day, sponsored by the National Organization for Rare Disorders, is Feb. 28, 2011. Visit the Rare Diseases Day website and click the “raise your hand” option. Pharmaceutical company Lundbeck Inc. will donate $1 toward rare disease research. Continue reading
EosinophilGirl 